A DAD of twins from Evesham is raising money for national charity Tamba to help fund the charity’s research into the devastating condition TTTS (Twin to Twin Transfusion Syndrome).
Paramedic Ben Rean will be cycling in the epic 100-mile Ride-London in August.
Ben wanted to support Tamba after his identical twin girls Isla and Jemima had a tough start in life arriving 11 weeks early because of TTTS.
“I want to do something to help so we can understand more about TTTS and reduce the heartache that so many twin families go through,” said Ben.
Ben and his wife Tabby were thrilled to find out at a 10-week scan that they were expecting twins and Tabby remembers the moment as the best day of her life.
“We walked away excited about having two babies and the fun and joy they would bring us,” said Ben.
Two weeks later at a scan the couple were told about the risk of having multiples, especially as their girls were identical and shared the same placenta.
Tabby should have had another scan at 16 weeks, but this was missed and the couple knew this wasn’t right so pressed hard for a scan.
Tamba’s Maternity Engagement Programme shows if units follow clinical guidance on the care of multiples, which includes ensuring the crucial 16-week scan takes place, that babies’ lives can be saved and there would be fewer neo-natal admissions.
Tabby found out she had TTTS at a scan when she was 17 weeks and five days pregnant – and it was serious.
Already suffering from acute hyperemesis gravidarum and in their local hospital on a drip, she was transferred to Birmingham Women’s Hospital under the care of twin expert Professor Mark Kilby.
“He told us there was a 60 per cent chance of losing them both and an 80 per cent chance that only one of the girls would survive. We were devastated,” said Ben.
Laser ablation was carried out and the girls survived. They then endured an agonising 72 hour wait for the next crucial scan, which fortunately showed two heartbeats. The intervention had worked.
Ben said: “We were being scanned weekly and planned for a c-section on December 18, 2017 but the girls had other ideas and Tabby went into labour at 29 weeks and two days and there was nothing we could do to stop this.
“Tabby’s placenta had abrupted the night before, and no-one knew. Both our beautiful twin girls had to be resuscitated, both were born septic and were rushed into NICU. Isla was 3lbs 2oz and Jemima 2lbs 7oz. We weren’t able to see them for hours – it was heartbreaking.”
The girls were in neo-natal care for six weeks and Ben says the staff there were ‘incredible’. The girls came home on their planned c-section date.
“They are doing so well now at 14 months old and we truly feel lucky. We have friends who have been through the same journey and lost both their babies.
“We have friends who had TTTS to a different level. We were one of 56 operation performed at Birmingham Women’s Hospital that year and with the 60 per cent chance of losing them both can see that we need to know more about TTTS.”
Visit www.justgiving.com/fundraising/benrean for more.
